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Showing posts from June, 2024

Recovery

 I thought I would just cover a few things here that anyone who is themselves or who has a loved one going on this rollercoaster journey like me, might find useful or interesting. 1. You will feel better once you’re home, everyone does, but don’t expect to feel normal! Get help, don’t do too much and if help isn’t automatically offered then demand it!! 2, if you come home with a drain, stick it in a tote bag that you can put on your shoulder. Easiest way to carry it and not forget it.  3. Take the painkillers and don’t be a hero! You will know your own pain tolerance so judge it accordingly. For me, so far paracetamols have been enough. I took codeine once but didn’t like how I felt. 4. Your bowels will be a bit buggered up. Surgery does this and codeine can make it worse. I was given medicine to help and also am eating fruit and prunes! 5. Rest but walk as well! Energy levels will vary but I have found that once I started walking more, my general health felt better. 6. Do your exercis

A Journey Part 2 - hello from the other side

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 Well, here I am! Operation was on Wednesday and today is Friday. It’s been quite an intense few days. So we were told to get to the hospital by 8am on Wednesday to have guide wires inserted. This is when they use ultrasound to place wires into the areas to be removed to help guide the surgeon.  Only issue was that the radiologist had called in sick. They had managed to get another one to cover but we had to wait for her arrive. It was about 10 when she saw me. I was supposed to have 2 wires inserted - one for Damien the bastard tumour and one for an area that hadn’t been biopsied but that looked a bit suspicious. The radiologist though spotted a 3rd tiny area that she felt looked dodgy. She wanted to put a wire in it to ensure it was taken out too but had to get my surgeon to agree first. He was in theatre so there was a huge delay but he did agree. So by lunchtime I had 3 wires stuck in my boob and was waiting on the ward. Now I’d been told my op would be at 8:30am but at this point

Fear and Fatigue

 I didn’t expect to feel so tired when I haven’t even started treatment yet and I’m still 10 days from surgery. Apparently Damien the bastard tumour may be releasing proteins into my bloodstream that can cause fatigue, that’s nothing to do with it spreading, by the way. Also I’m taking no supplements at the moment so my hormones are completely mental which may account for some of the fatigue. Plus stress is probably another factor! As for fear. It’s there all the time. After diagnosis I had to go to bed completely exhausted so my mind didn’t start the spiral of blind panic. Now it’s pretty much a constant low level of fear with moments still of knee trembling terror. I think it’s normal to be scared and also I’m not good at waiting for things. It’s also a lack of control and fear of the unknown. So much depends on the surgery. It goes well with clear margins and my treatment plan simplifies. Worse case scenario means another 8 hour surgery with 12 weeks recovery. Then chemo, radiothera

A journey part 1

Ok, deep breath, here I go. So breast cancer has been a lurking presence in my life for a long time. My mum had it twice. First time she had a lumpectomy and radiotherapy. Second time after repeated lumpectomies she ended up with a mastectomy and a decade on hormone treatment. I had it drummed into me about how to check and what to do to mitigate the fact that I was higher risk because of my mum.  Anyway on 26th April I found a tiny lump while in the shower. We were going to Coventry that weekend so I brooded on it until Monday and then pulled on my big girls pants and got an emergency doctors appointment. She confirmed it was there and very small (1-2 cm) she referred me immediately to the hospital and I got an appointment for 9th May.  I spent the time waiting for the appointment googling different things it could be apart from cancer. My appointment included a multitude of tests. I had a mammogram first, then a second one with higher contrast,  then an ultrasound where the radiologi